NOTE: This Facebook Page is defunct as of December 2013. I do not know if and when it will be relaunched.
Benzodiazepine Wall of Pain – Changed Name and URL as of July 12, 2013;
The Official Facebook Benzodiazepine Wall of Pain Page (now known as “The Benzodiazepine Project”) contains of a comprehensive database of personal accounts submitted by real people, just like you and I, who have been affected by the Benzodiazepine Wihdrawal Syndrome in some way. It allows these people to reach out and feel validated by their experience in knowing that they’re not alone. That there are other people out there, right now, who are going through what you are, or have gone through. In addition to providing an opportunity for people’s experiences to be heard, the Page also provides up-to-date information and resources regarding benzodiazepines.
The Page successfully reaches the masses as society’s Social Networking sites like Facebook have become more easily accessible to all people– professionals and patients alike: on your computer, tablet, smartphone or other mobile device.
One of the problems with a syndrome of any variety is that more often than not, the syndrome can at times be “invisible.” The Benzodiazepine Project Facebook Page personifies the syndrome and allows it to not just be heard, but seen. While most benzo withdrawal symptoms can be quite intense in nature, not many of them are visible to the naked eye– but there are exceptions, such as a peculiar rash reported by people who claim to be experiencing the benzo withdrawal syndrome in its severest form. The Benzodiazepine Project Page featured an expose of these skin reactions, and you can view this expose here (link opens in new window) on the Page’s “Notes” section.
After I submitted my own story, it had reached a massive audience in just a few shares and a day or so, (approximately 3,030), the Page editor told me. That alone is just a small drop in a sea of potential progress in bringing awareness to this condition. So it was very worth it to me to share my story, as it may be for you to share yours.
One person on Facebook was so moved by my own story that she herself felt inspired to finally come out with her own story:
“i have to share this - an hour ago i clicked like on a wall of pain story, slightly worried that it was public and would be seen by everyone. i just received a very kind and lengthy message, which reduced me to tears, from a co-owner of the place i work (occasionally) saying that he has come off benzos but didn’t know that what was happening to him was withdrawal UNTIL READING THE WALL OF PAIN STORY JUST NOW! i cannot describe what a huge relief this is. i have been tormented by indecision about whether or not to tell the boss i’m sick and now all of that has been lifted in an instant. i can’t believe it – it’s like something magical just occurred”
Additionally, the story of Matt Samet, author of “Death Grip: A Climber’s Escape from Medication Madness”, along with many other personal stories, including a personal account from a teen’s perspective witnessing her mother experience benzo withdrawal, are featured on the Page. Collectively, they have all reached the masses in the matter of clicking a simple “like” or a “Share.” That’s the power of Social Networking.
The Page editor feels that these testimonies by real people being available on a social network like Facebook has the potential to reach out to other people who may not have otherwise researched the syndrome.
“I basically want people who are willing to tell their stories (anonymous or with full disclosure) to spread the word and to give people something to relate to. Stories can be submitted at ANY stage of the process….and can be updated at anytime. My hope is to have people post some success stories as well, so there’s 2 stories to reference on the same person, unless they’re submitting when they’re already healed.”
– Owner of The Benzodiazepine Project Page
To submit YOUR story to the Benzodiazepine Project Page, email the Page editor at the address provided below, including your name or anonymously, describing your experience, and a photograph of your choice. (It does not have to be a photograph of yourself, if you do not want it to be)